skip to main content

Beta This is a prototype - your feedback will help us improve it

up-to-date

Data for financial year ending 30 April 2019

Fanconi Hope

  • Income

    £91.8K

  • Spending

    £15.6K

  • Status

    Up-to-date

Charity no. 1126894

Contact details

Public address

  • Po Box 905, Southsea, Hants, PO1 9JG

Aims & activities

Connecting families and raising awareness amongst affected families and the general public. UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support. Attendance at Medical events and conferences. Initiation and co-sponsorship of International FA Gene Therapy Working Group.

What the charity does

  • The advancement of health or saving of lives

Who the charity helps

  • Children/young people
  • People with disabilities
  • The general public/mankind

How the charity works

  • Provides services
  • Provides advocacy/advice/information
  • Sponsors or undertakes research
Financial history
Compliance history

Fundraising

Raises funds from the Public

Gift aid

Recognised by HMRC for gift aid

Charitable objects

1. TO SUPPORT A UK FANCONI ANAEMIA NATIONAL REGISTRY SO AS TO ENSURE FANCONI ANAEMIA AFFECTED CHILDREN AND THEIR FAMILIES ARE KEPT TRACK OF AND PROVIDED WITH THE BEST CARE. 2. TO PROMOTE AWARENESS AND UNDERSTANDING OF FANCONI ANAEMIA AMONG AFFECTED FAMILIES, THE MEDICAL PROFESSION AND THE GENERAL PUBLIC. 3. TO ENCOURAGE TRANSLATIONAL RESEARCH THAT MIGHT DIRECTLY BENEFIT FANCONI ANAEMIA RELATED CHILDREN AND THEIR FAMILIES. 4. TO ENCOURAGE RESEARCH IN THE AREA OF FANCONI ANAEMIA THAT MIGHT HAVE BEBEFIT FOR THE GENERAL PUBLIC, E.G. IN THE TREATMENT OF CANCERS IN GENERAL.

Governing document

TRUST DEED 04 MAY 2008

Area of benefit

Undefined, In Practice

Organisation type

Standard registration

  • 7 Trustees
  • 2 Volunteers

Trustee board

Trustee Other trusteeships Charity status
Robert Dalgleish Bsc None on record
Louise Parry None on record
Dr Josu De La Fuente None on record
Dr Stefan Meyer None on record
Dr Marc Tischkowitz None on record
Dr Nigel Jones None on record
Beth Lee None on record

Areas of operation

List of regions

  • Throughout England And Wales