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up-to-date

Data for financial year ending 31 December 2018

Cure Eb (Formerly Known As Sohana Research Fund)

  • Income

    £774.6K

  • Spending

    £1.2M

  • Status

    Up-to-date

Charity no. 1158672

Contact details

Public address

  • 10 Huntingdon Street, London, N1 1BU

Aims & activities

SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants: (1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and (2) to fund the treatment of patients who are suffering from EB.

What the charity does

  • The advancement of health or saving of lives
  • Disability

Who the charity helps

  • People with disabilities
  • Other defined groups

How the charity works

  • Makes grants to individuals
  • Makes grants to organisations
  • Sponsors or undertakes research

Income and Endowments:

£774.6K

Expenditure:

£1.2M

Assets and liabilities

  • £0.0K Own use assets
  • £0.0K Long term investments
  • £0.0K Defined benefit pension scheme asset or liability
  • £2.0M Other assets
  • £397.7K Total liabilities
Financial history
Compliance history

Fundraising

Raises funds from the Public

Trading

This charity has one or more trading subsidiaries

Gift aid

Recognised by HMRC for gift aid

Charitable spending ratios

148%
2%
0%

Charitable objects

FOR THE PUBLIC BENEFIT, (A) THE ADVANCEMENT OF HEALTH AND (B) THE RELIEF AND ASSISTANCE OF PEOPLE IN NEED WHO ARE SUFFERING FROM EPIDERMOLYSIS BULLOSA, IN PARTICULAR BUT NOT EXCLUSIVELY BY MAKING GRANTS: (1) TO FUND MEDICAL RESEARCH AND/OR CLINICAL TRIALS ANYWHERE IN THE WORLD FOR THE PURPOSE OF DISCOVERING, DEVELOPING AND DELIVERING TREATMENTS FOR EPIDERMOLYSIS BULLOSA; AND (2) TO FUND THE TREATMENT OF PATIENTS WHO ARE SUFFERING FROM EPIDERMOLYSIS BULLOSA. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 OR SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.

Governing document

CIO - FOUNDATION REGISTERED 25 SEP 2014 AMENDED ON 20 MAR 2018 AMENDED ON 21 MAR 2018

Organisation type

Charitable Incorporated Organisation

Other names

Srf

Policies

Safeguarding vulnerable beneficiaries
Conflicts of interest
  • 6 Trustees
  • 0 Employees
  • 10 Volunteers

Trustee board

Trustee Other trusteeships Charity status
Michael Georges De Lathauwer Medical Aid Films Limited Up-to-date
Professor David Kelsell None on record
James Douglas Collins None on record
Sharmila Vijayanthi Nikapota None on record
Tazim Hall None on record
Duncan Wales None on record

Areas of operation

List of regions

  • France
  • Spain
  • Throughout England And Wales
  • United States