skip to main content

Beta This is a prototype - your feedback will help us improve it

up-to-date

Data for financial year ending 31 March 2018

Mds Uk Patient Support Group

  • Income

    £204.1K

  • Spending

    £144.0K

  • Status

    Up-to-date

Charity no. 1145214 Company no. 07818480

Contact details

Public address

  • Kings College Hospital, Denmark Hill, London, SE5 9RS

Aims & activities

Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts & aim to connect with all UK haematology departments.

What the charity does

  • The advancement of health or saving of lives

Who the charity helps

  • Children/young people
  • Elderly/old people
  • People with disabilities

How the charity works

  • Provides services
  • Provides advocacy/advice/information
Financial history
Compliance history

Fundraising

Raises funds from the Public

Gift aid

Recognised by HMRC for gift aid

Charitable objects

1) TO RELIEVE SICKNESS AND PRESERVE, PROMOTE AND PROTECT HEALTH OF SUFFERERS OF MYELODYSPLASTIC SYNDROME (MDS) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT EDUCATION AND PRACTICAL ADVICE. 2) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC 0001IN THE UNITED KINGDOM IN ALL AREAS IN RELATION TO MDS. 3) TO PROMOTE AND SUPPORT SCIENTIFIC RESEARCH INTO MDS, FOR THE TREATMENT OF MDS AND THE CARE OF SUFFERERS OF MDS, AND THOSE DISPOSED TO THE DEVELOPMENT OF SUFFERING MDS.

Governing document

MEMORANDUM AND ARTICLES INCORPORATED 21/10/2011

Organisation type

Standard registration

Policies

Risk management
Safeguarding vulnerable beneficiaries
Conflicts of interest
Volunteer management
  • 7 Trustees
  • 10 Volunteers

Trustee board

Trustee Other trusteeships Charity status
Sophie Wintrich None on record
Fiona Pirilla None on record
Don Barrett Age Uk Richmond Upon Thames Up-to-date
Russell Cook None on record
Christine Charlwood None on record
Edward Peel (Chair) None on record
Claudia Richards None on record

Areas of operation

List of regions

  • Throughout England And Wales